SUPPORT SERVICES DEPARTMENT

 
General Information
Description of ProgramConsists of two departments, the Information Resource Center and the National Volunteer Network. The Information Resource Center provides individualized information, counseling and support about diagnosis and management of Marfan Syndrome and related disorders to patients, family members and medical professionals. The National Volunteer Network consists of chapters, network groups and support groups. Groups provide support to members and carry out the Foundation's mission at the local level. Call for more information.
LocationNassau
Geographic AreaPort Washington, New York; Town of North Hempstead, New York; Nassau County, New York
 
Client Information
EligibilityPeople with Marfan Syndrome and related connective tissue disorders and their families.
 
Availability
Hours of OperationMon-Fri 9am-5pm
 
Contact Information
Contact's NameJennifer Buffone, LCSW
Contact's PositionDirector of Support Services and Volunteer Development
Physical Site Address 122 Manhasset Avenue
Physical Site City, State, ZipPort Washington, NY 11050
Mailing Address 122 Manhasset Avenue
Mailing City, State, ZipPort Washington, NY 11050
Main Phone(516)883-8712 ext. 22
Other Phone(800)-8-MARFAN X26 (24 Hour Helpline)
Fax(516)883-8040
Program Emailjbuffone@marfan.org
Web Addresswww.marfan.org
 
Additional Information
Volunteer OpportunitiesYes
Last UpdateFeb12
 
Affiliated Agency and Services
Affiliated Agency:
NATIONAL MARFAN FOUNDATION
This Program: SUPPORT SERVICES DEPARTMENT
Affiliated Services: SUPPORT SERVICES DEPARTMENT