Service Search Results

DIVISION OF MEDICAL GENETICS

· 1554 Northern Boulevard, Manhasset, NY, 11030 · Map

Provides diagnosis and treatment for adults and children with inherited and sporadic genetic disorders. Special programs include: Prenatal Genetic Counseling, Lysosomal Storage Disease Program, Familial Cancer Risk Counseling, Neurofibromatosis Clinic, Huntington Disease Predictive Testing, Marfan Syndrome and Craniofacial Center.…

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HUMAN GROWTH FOUNDATION

· 997 Glen Cove Avenue, Suite 5, Glen Head, NY, 11545 · Map

Dedicated to helping children and adults with disorders of growth and growth hormone through research, education, support, and advocacy.…

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INTERNSHIPS

· 22 Manhasset Avenue, Port Washington, NY, 11050 · Map

Offers internship positions at the National Marfan Foundation that was founded in 1981 by people affected by the Marfan syndrome and their families. Its purpose is to: disseminate accurate and timely information about the condition to patients, family members and…

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MARFAN SYNDROME

718-470-7350 · 1554 Northern Blvd., Manhasset, NY, 11030 · Map

Patients are evaluated by the Divisions of Human Genetics and Cardiology. Referrals to Orthopedic and Ophthalmologic services are coordinated by the genetic counselor, as needed. Patients are seen for medical follow-up and counseling at reqular intervals. …

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SUPPORT SERVICES DEPARTMENT

· 22 Manhasset Avenue, Port Washington, NY, 11050 · Map

Consists of two departments, the Information Resource Center and the National Volunteer Network. The Information Resource Center provides individualized information, counseling and support about diagnosis and management of Marfan Syndrome and related disorders to patients, family members and medical professionals.…

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