SUPPORT SERVICES DEPARTMENT

SUPPORT SERVICES DEPARTMENT

 
General Information
Description of ServiceConsists of two departments, the Information Resource Center and the National Volunteer Network. The Information Resource Center provides individualized information, counseling and support about diagnosis and management of Marfan Syndrome and related disorders to patients, family members and medical professionals. The National Volunteer Network consists of chapters, network groups and support groups. Groups provide support to members and carry out the Foundation's mission at the local level. Call for more information.
LocationNassau
Geographical AreaPort Washington, New York; Town of North Hempstead, New York; Nassau County, New York
 
Client Information
EligibilityPeople with Marfan Syndrome and related connective tissue disorders and their families.
 
Availability
Hours of Operation Mon-Fri 9am-5pm
Contact Information
 
Contact's Name Jennifer Buffone, LCSW
Contact's Position Director of Support Services and Volunteer Development
Physical Site Address 1 22 Manhasset Avenue
Physical Site City, State, Zip Port Washington, NY 11050
Mailing Address 1 22 Manhasset Avenue
Mailing City, State, Zip Port Washington, NY 11050
Main Phone (516)883-8712 ext. 22
Other Phone (800)-8-MARFAN X26 (24 Hour Helpline)
Fax (516)883-8040
Service Location Email jbuffone@marfan.org
Web Address www.marfan.org
 
Additional Information
Volunteer OpportunitiesYes
Last UpdateFeb12
 
 
Affiliated Agency, Programs, and Services
Affiliated Agency: NATIONAL MARFAN FOUNDATION
Affiliated Program: SUPPORT SERVICES DEPARTMENT
This Service: SUPPORT SERVICES DEPARTMENT
 
Taxonomy Postings
Posted to Categories: Families (YK-2000)
Families and Individuals Needing Support (YJ)
Genetic Disorders (YF-3000.3280)
Health/Disability Related Support Groups (PN-8100.3000)
Individual and Family Support Services (PH)
Individual Counseling (RF-3300)
Marfan Syndrome (YF-3000.4910)
Patients (YF-6000)
Support Groups (PN-8100)
Volunteer Opportunities (PX)