Disease/Disability Information

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    Taxonomy Code: LH-2700.1700

    Programs that provide information about the causes and origins, preventive measures, symptoms, screening/diagnostic procedures, and/or methods of treatment or management including the latest research for specific illnesses or disabling conditions.

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    There are 23 matching records.
    Service NameDescriptionLocationProgramAgency
    AIDSINFOProvides answers to questions about HIV/AIDS treatment plus free telephone reference for people with HIV, their families and friends and Health Care providers, and offers updated information from on-line databases and on federally approved drugs. Staffed by information specialists who answer questions on HIV treatment options using federal, national and community based information resources. Provides copies of federally approved HIV/AIDS treatment guidelines, Retrovival Drugs and Information. Contacts, phone numbers, eligibility and locations given for open clinical trials, vaccine trials and prophylaxis for exposed health care workers. Printouts, custom database searches, press releases and relevant pamphlets and booklets are sent to callers via fax, mail, fed-ex, etc. Call for more information.AIDSINFOUNITED STATES DEPARTMENT OF HEALTH AND HUMAN SERVICES-AIDSINFO
    CHILDREN WITH SPECIAL HEALTH CARE NEEDS PROGRAM/PHCP; PHYSICALLY HANDICAPPED CHILDREN'S PROGRAMProvides medical evaluations at state approved specialty centers for children 0-21 years of age with chronic health problems. Offers financial assistance to meet individual health care needs. Provides information to families of chronically ill children (0-21 years of age) about community based programs for children with special health care needs. Services provided include outpatient care, medication, medical equipment, orthotics and hearing aids.SuffolkCHILDREN WITH SPECIAL HEALTH CARE NEEDS PROGRAM/PHCP; PHYSICALLY HANDICAPPED CHILDREN'S PROGRAMSUFFOLK COUNTY DEPARTMENT OF HEALTH SERVICES-DIVISION OF SERVICES FOR CHILDREN WITH SPECIAL NEEDS
    CHRONIC FATIGUE SUPPORT GROUPProvides a support group for people with Chronic Fatigue Syndrome, also known as Epstein-Barr, CFS or CFIDS and Fibromyalgia. Meets the 1st Thursday of every month at 7pm (Beginners Meeting) and 7:30pm (Regular Meeting) in Conference Rooms 3,4, and 5.SuffolkCHRONIC FATIGUE SUPPORT GROUPJOHN T. MATHER MEMORIAL HOSPITAL
    COMMUNITY EDUCATION SERVICESFree educational programs are available for schools, nursing homes, health care agencies, social clubs and any other organization that would like to be educated on the topic of epilepsy, seizure awareness, and first aid. Free seminars on a variety of epilepsy related subjects are conducted on a monthly basis for individuals with epilepsy and their family members, caretakers and social workers or any other interested parties. Training hours are available for Medicaid Service Coordinators and CEUs for Nurses. Information and referral services are available to individuals with epilepsy.NassauCOMMUNITY EDUCATION SERVICESEPIC LONG ISLAND
    COMPREHENSIVE EPILEPSY CENTERProvides a complete program of diagnosis, monitoring and treatment. It offers expert help to adults and teenagers with seizure disorders who have not yet been definitely diagnosed and to those who have already had a diagnosis of epilepsy but are seeking improved management or control. The Center's program includes a combination of services for inpatient and outpatient care. Services include: diagnosis of epilepsy and related conditions, establishment of a medication plan considering factors such as seizure control, behavioral/cognitive manifestations and toxicity, a four-bed epilepsy unit with on-line computer analysis for continuous EEG and video monitoring, clinical trials of investigational drugs, evaluation of intractable seizures for the surgical treatment option, preoperative and postoperative care following surgery, psychosocial assessment and rehabilitation referrals and educational and social support groups.NassauCOMPREHENSIVE EPILEPSY CENTERLONG ISLAND JEWISH MEDICAL CENTER
    DIABETES CLUBTeaches strategies for understanding, managing, and living with diabetes, including gestational diabetes.SuffolkDIABETES CLUBSOUTHSIDE HOSPITAL
    DIABETES EDUCATION CENTEROffers men, women, and children, who are diet-controlled, taking oral medication or injecting insulin, education programs to help them manage their condition. In addition to individual consultations with a diabetes nurse specialist and registered dietician, group classes are available for adults and special learning and support groups and are tailored to children.NassauDIABETES EDUCATION CENTERWINTHROP UNIVERSITY HOSPITAL
    DIABETES PROGRAMOffers a coordinated, comprehensive program that combines patient compliance with the expertise of a team of physicians, nurses, nutritionists, and diabetes nurse educator, who work closely with the patients' physician to develop individualized programs for optimal disease management and prevention of long-term complications.NassauDIABETES PROGRAMWINTHROP UNIVERSITY HOSPITAL
    DON MONTI CANCER CENTEROffers comprehensive cancer diagnosis/care, including: diagnostic and interventional radiology nuclear medicine sentinel lymph node biopsy breast care center. Also provides inpatient/out-patient chemotherapy, investigational treatment, nuclear medicine, radiation therapy, surgical oncology, pain management, physical therapy/rehabilitation services. Offers children visitation, 24 hour visiting, overnight accommodations for family members and a wide variety of support services.SuffolkDON MONTI CANCER CENTERHUNTINGTON HOSPITAL
    EDUCATIONAL RESOURCES AND SERVICESProvides written information and counseling by telephone appointment about the alternatives to hysterectomy and coping with the after effects of the surgery. Referrals are also available to physicians who specialize in conditions for which hysterectomy is recommended. Publishes newsletter, provides medical journal articles and holds conferences annually.EDUCATIONAL RESOURCES AND SERVICESHYSTERECTOMY EDUCATIONAL RESOURCES AND SERVICES
    FREE COMMUNITY LECTURESOffers free lectures on health topics to community members with the objective of educating, raising awareness, improving understanding of risk factors, diagnostic procedures and treatment. Topics may include cancer, diabetes, nutrition, stroke, cardiology and glaucoma. Topics are based on requests from the community, hospital physicians, staff and national health observances and recognition days. Call for more information.SuffolkGOOD SAMARITAN UNIVERSITYGOOD SAMARITAN HOSPITAL MEDICAL CENTER
    GENETIC COUNSELING/TESTINGAssesses the chance for a given individual to develop cancer based on family history and other risk factors. Arranges meeting with a genetic counselor and a geneticist to discuss assessment. Offers gene-specific testing, if appropriate, after counseling session. Provides options for continued surveillance/prevention.NassauNORTH SHORE UNIVERSITY HOSPITAL-MANHASSETNORTH SHORE UNIVERSITY HOSPITAL-MANHASSET
    HEART CLUBProvides education and emotional support for heart patients and their families.SuffolkHEART CLUBHUNTINGTON HOSPITAL
    HUMAN GENETICS CENTEROffers comprehensive genetic services that provide physicians and their patients with essential information about advanced maternal age and pregnancy, inherited illnesses, chromosomal disorders, congenital anomalies, recurrent miscarriages and inherited disorders associated with hormonal abnormalities. Genetic counseling, prenatal diagnostic services, cytogenetics laboratory services, and a genetic/metabolic endocrine program are offered.NassauHUMAN GENETICS CENTERWINTHROP UNIVERSITY HOSPITAL
    LIVE, LOVE, AND LAUGH AGAINProvides a professionally staffed support group for women with breast cancer and their families. Students permitted. Meets the 4th Tuesday of every month at 7pm at the Fortunato Breast Health Center.SuffolkLIVE, LOVE, AND LAUGH AGAINJOHN T. MATHER MEMORIAL HOSPITAL
    LONG ISLAND CHAPTERProvides education about Tourette Syndrome (TS) to professionals and the general public, generates funding for research about Tourette Syndrome and provides services to people with Tourette Syndrome and their families, such as support groups and social events. Also publishes newsletters. Call or visit the website for additional information.NassauLONG ISLAND CHAPTERTOURETTE ASSOCIATION OF AMERICA
    OFFICE OF MINORITY HEALTH (OMH)Offers medical and technical assistance to minority community organizations in Suffolk County. Develops community-based outreach programs for high risk individuals and educational awareness programs on prevention, diagnosis and treatment of illnesses. Collects and maintains data on diseases with greatest health disparities.SuffolkOFFICE OF MINORITY HEALTH (OMH)SUFFOLK COUNTY DEPARTMENT OF HEALTH SERVICES
    OSTOMY SUPPORT GROUPProvides a support group which encourages patients to develop independence and to assimilate the reality of an ostomy into their physical and emotional lives. Families of patients welcome. Call for information/schedule.SuffolkOSTOMY SUPPORT GROUPBROOKHAVEN MEMORIAL HOSPITAL MEDICAL CENTER
    OSTOMY SUPPORT GROUPProvides support and education to stoma patients and their families in coping with and managing ileostomy, urostomy or colostomy.SuffolkOSTOMY SUPPORT GROUPNORTHWELL HEALTH
    PERSPECTIVES IN HEALTHProvides free community education programs. Meetings held at the Mineola Community Center, 155 Washington Blvd., Mineola. For further information please call (516)663-2234.NassauPERSPECTIVES IN HEALTHWINTHROP UNIVERSITY HOSPITAL
    PROJECT ALSAn advocacy group that raises public awareness and funds for effective treatments and a cure for ALS (Amyotrophic Lateral Sclerosis), also known as Lou Gehrig's disease. Direct monies raised to ALS researchers worldwide.PROJECT ALSPROJECT ALS
    RESOURCES FOR CHILDREN PROGRAMSProvides information, referral, advocacy, training and support for parents and professionals seeking programs and services for special needs children age birth to 26 with learning, developmental, emotional or physical disabilities. Can act as case manager if needed. Provides training and technical assistance on educational issues. Maintains database on special needs services in New York City region. Publishes directories, including a Comprehensive Directory and Directory of Camps and Summer programs. Designated a Parent Training and Information Center by the United States Department of Education.RESOURCES FOR CHILDREN PROGRAMSRESOURCES FOR CHILDREN WITH SPECIAL NEEDS, INC.
    THE DIABETES EDUCATION SERIESProvides education and support to diabetics and their families who want to take control of their disease and incorporate time saving tips into their daily routine. Provides up-to-date information to all on aspects of diabetes self management, including diet, medication and exercise.SuffolkTHE DIABETES EDUCATION SERIESNORTH SHORE-LIJ HUNTINGTON HOSPITAL-DOLAN FAMILY HEALTH CENTER

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