Personal Health Care Advocate Services

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Personal Health Care Advocate Services has no subcategories

    Taxonomy Code: LH-6300.6550

    Programs that help people navigate through the maze of doctors' offices, clinics, hospitals, outpatient centers, insurance and payment systems, patient-support organizations and other components of the health care system with the objective of supporting timely delivery of quality care and ensuring that patients, survivors and families are satisfied with their encounters with the health care system. Personal health care advocates are trained health care workers, often nurses, or volunteers familiar with the health care system who work independently of any health care institution. They help patients identify specialists, coordinate appointments with providers to assure timely delivery of diagnostic and treatment services, provide "cheat sheets" of questions, and lay out the choices patients have in plain English. They may also ensure that appropriate medical records are available at scheduled appointments, accompany patients to medical appointments, arrange language translation or interpretation services, facilitate financial support and help with paperwork, negotiate insurance claims, arrange transportation and/or child/elder care, provide access to clinical trials and facilitate linkages to follow-up services. Some programs contract with employers to serve as personal advocates for employees who are ill. Others work exclusively with individuals who have specific illnesses, e.g., cancer.

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    Service NameDescriptionLocationProgramAgency
    ADELPHI NY STATEWIDE BREAST CANCER HOTLINE & SUPPORT PROGRAMProvides a statewide breast cancer hotline offering information, referrals, support groups for women and men with breast cancer. The goal is to educate, support and empower and advocate for breast cancer patients, professionals and the community, call our hotline seven days a week and speak with specially trained, professionally supervised volunteers for information, referrals and emotional support. Previous support groups were offered to those who are: General Support Group; Support Group for Friends and Family of People Diagnosed with Breast Cancer; Young Women’s Support Group, Under 40; Stage 4/Metastatic Breast Cancer; Touchstone: Book Club/Support Group; Cafecito – On-Going Breast Cancer Support Group for Latina Women; Online Support Group; Support Group for Men with Breast Cancer and Time-Limited, Topic-Focused, Psychoeducational Breast Cancer Groups. Support Groups are available upon request. If you do not see the group you want below, please call our hotline at (800)877-8077. We form support groups based upon your requests and needs. All support groups are free & confidential. In addition the program offers workshops, forums, and seminars all aimed as a supplement to treatment. Check the calendar for the most current programs offered.NassauADELPHI NY STATEWIDE BREAST CANCER HOTLINE & SUPPORT PROGRAMADELPHI UNIVERSITY

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