Health Related Advocacy Groups

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    Taxonomy Code: TD-1600.2570

    Organizations that are dedicated to protecting and improving the quality and affordability of health and long term care for all individuals and advocating for changes in the health care system that will achieve these goals; or which advocate more broadly for legislation and other measures such as bans on smoking that have a positive impact on public health. Specific issues may include extending the reach of childhood immunization programs, expanding services for people with specific disabilities or health conditions, funding medical research, supporting or opposing stem cell research, establishing the liability of managed health care organizations and nursing facilities for the consequences of their decisions, providing a prescription drug benefit for the elderly, passing a powerful patient's bill of rights, advocating for universal health care or taking a position on the merits of specific medical procedures or forms of treatment.

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    There are 8 matching records.
    Service NameDescriptionLocationProgramAgency
    COMMUNITY HEALTH SERVICES EDUCATION AND SUPPORT FOR PATIENT SAFETYOffers community health education and workshops related to patient safety and advocacy. Call for more information.NassauCOMMUNITY HEALTH SERVICES EDUCATION AND SUPPORT FOR PATIENT SAFETYPULSE OF NEW YORK, INC.
    FAMILY SUPPORT PROGRAMOffers individualized case management provided by a team of experienced and compassionate social workers, Child-Life specialists, art Therapists specialists for children with a life-threatening illness and their families. Services include emotional support, palliative/bereavement support, financial assistance, and advocacy support.SuffolkFAMILY SUPPORT PROGRAMFRIENDS OF KAREN, INC.
    HOME CARE ASSOCIATION OF NEW YORK STATE, INC.Seeks to promote and enhance the quality, accessibility, and availability of home care. Interfaces with state and federal lawmaking bodies, regulatory agencies, and fiscal intermediaries to interpret, challenge, or support regulations that affect home health care and services. Actively involved in influential councils, committees, and task forces. Membership totals over 500 agencies, organizations, and associate members. Website offers search capability to locate providers throughout New York State.HOME CARE ASSOCIATION OF NEW YORK STATE, INC.HOME CARE ASSOCIATION OF NEW YORK STATE, INC.
    HUMAN GROWTH FOUNDATIONDedicated to helping children and adults with disorders of growth and growth hormone through research, education, support, and advocacy.NassauHUMAN GROWTH FOUNDATIONHUMAN GROWTH FOUNDATION
    IPROProvides its expertise in the field of health care evaluation to government, commercial insurers, unions, and managed care organizations. Ipro is under contract with the Centers for Medicare & Medicaid Services, an agency of the U.S. Department of Health and Human Services, to improve the quality of health care for people with Medicare.NassauIPROIPRO
    NATIONAL ORGANIZATION FOR RARE DISORDERSActs as a clearinghouse and referral service for information on rare diseases. Maintains a comprehensive rare disease database, which provides families with information on over 1,100 rare disorders. Its networking program links families with other families who are afflicted with similar disorders. Accumulates and disseminates information about orphan drugs and devices, making known their availability. Advocates the needs of people with rare disorders. Provides disease specific medical reports written in lay language. Also offers a Medication Assistance Program for specific drugs and a medical equipment exchange program. Publishes Orphan Disease Update and Resource Guide . Call for more information.NATIONAL ORGANIZATION FOR RARE DISORDERSNATIONAL ORGANIZATION FOR RARE DISORDERS
    THE EAST HAMPTON HEALTHCARE FOUNDATIONProvides improved access to quality healthcare services in the town of East Hampton. Offers primary healthcare to uninsured through programs at the East Hampton Healthcare Facility. Funds programs to support healthcare access and public health improvement. Provides grant funds to community organizations sponsoring healthcare activities.SuffolkTHE EAST HAMPTON HEALTHCARE FOUNDATIONTHE EAST HAMPTON HEALTHCARE FOUNDATION
    WALKABILITY PROGRAMPromotes the benefits of walking via "mock prescriptions" to encourage people to walk, coordinates with local towns and villages to make streets safer for walking, offers a database listing year-round walking events and trails, and provides and online portal for members to track their progress.SuffolkWALKABILITY PROGRAMLONG ISLAND HEALTH COLLABORATIVE

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