Cystic Fibrosis

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Cystic Fibrosis has no subcategories

    Taxonomy Code: YF-3000.2320

    An inherited disease that affects the pancreas, respiratory system and sweat glands, which usually begins in infancy and is characterized by chronic respiratory infection, pancreatic insufficiency and heat intolerance. Prognosis is poor as there is no cure, but antibiotics have prolonged the life of many patients.

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    There are 3 matching records.
    Service NameDescriptionLocationProgramAgency
    CYSTIC FIBROSIS CENTERProvides comprehensive care to cystic fibrosis patients from infancy to adulthood. Offers a holistic and family focused approach to patient care with an emphasis on promoting normal physical and emotional growth and development. Goals include slowing the progression of the disease, prevention and treatment of complications and helping the patients integrate the disease and strenuous medical treatments into daily life. Provides a home care program. Parent support groups are available on a as needed basis.NassauCYSTIC FIBROSIS CENTER COHEN CHILDREN'S MEDICAL CENTER NORTHWELL HEALTH
    JEWISH GENETIC DISEASE PROGRAMCertain inherited diseases occur more frequently in a given ethnic or racial group than in the general population. The Jewish Genetic Disease Program provides education, genetic screening, genetic counseling and clinical services for individuals or families commonly affected by these diseases. Fanconi Anemia (Type C), Tay-Sachs Disease, Canavan Diseases, Niemann-Pick Disease, Bloom Syndrome,Mucolipodosis (Type lV), Gaucher Disease (Type l), Familial Dysautonomia and Cystic Fibrosis are among the many genetic diseases that have been tested.NassauJEWISH GENETIC DISEASE PROGRAM COHEN CHILDREN'S MEDICAL CENTER NORTHWELL HEALTH
    LONG ISLAND OFFICEProvides information and referral to people with cystic fibrosis and raises money for cystic fibrosis research.SuffolkLONG ISLAND OFFICECYSTIC FIBROSIS FOUNDATION-GREATER NEW YORK CHAPTER

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