Families/Friends of Chronically Ill

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Families/Friends of Chronically Ill has no subcategories

    Taxonomy Code: YJ-2400

    The parents, children, spouses, partners, friends or other relatives or significant others of people who have serious medical conditions which have persisted over a long period of time, whose own patterns of personal, social and familial coping have been significantly affected by interaction with and concern about the chronically ill person.

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    There are 41 matching records.
    Service NameDescriptionLocationProgramAgency
    BREAST CANCER SUPPORT-NEWLY DIAGNOSEDOffers support group for women recently diagnosed with breast cancer, and those still undergoing treatment. Call for more information.NassauBREAST CANCER SUPPORT-NEWLY DIAGNOSED1 IN 9: THE LONG ISLAND BREAST CANCER ACTION COALITION
    BREAST HEALTH CENTEROffers the following services for women who have been diagnosed with breast cancer: laboratory, pharmacy, physical therapy, social services, radiography, MRI, Magnetic Resonance Imaging, CT Scanning, Computerized Tomography, nuclear medicine and ultrasound in addition to a full-range of psycho-social and nutrition services. The Tumor Registry has a database of over 6,700 cases established since January 1983. The center also offers support groups for women newly diagnosed with breast cancer. Other support groups are for their caregivers, spouses and significant others. In addition there is an extensive library of books, pamphlets and videotapes on risk factors and prevention.SuffolkBREAST HEALTH CENTERGOOD SAMARITAN HOSPITAL MEDICAL CENTER
    CAMP SIMCHAA camp for Jewish children with cancer and other life threatening illnesses. Accepts children currently in treatment and post treatment.CAMP SIMCHACHAI LIFELINE
    CAMP SIMCHA SPECIALOffers a camp for Jewish children with serious chronic or genetic conditions. Children must be at appropriate cognitive level (within 1-2 years of academic level).CAMP SIMCHA SPECIALCHAI LIFELINE
    CAMP SUNSHINEOffers a year round camp for children with life threatening illnesses and their families to help alleviate the strain, provide fun experiences, and allow them to meet other families facing similar challenges.CAMP SUNSHINECAMP SUNSHINE
    CANCER SUPPORT GROUPProvides opportunities for individuals dealing with cancer related illness to discuss relevant issues in a comfortable atmosphere. Call for schedule.NassauCANCER SUPPORT GROUP1 IN 9: THE LONG ISLAND BREAST CANCER ACTION COALITION
    CHILDREN WITH SPECIAL HEALTH CARE NEEDS PROGRAM/PHCP; PHYSICALLY HANDICAPPED CHILDREN'S PROGRAMProvides medical evaluations at state approved specialty centers for children 0-21 years of age with chronic health problems. Offers financial assistance to meet individual health care needs. Provides information to families of chronically ill children (0-21 years of age) about community based programs for children with special health care needs. Services provided include outpatient care, medication, medical equipment, orthotics and hearing aids.SuffolkCHILDREN WITH SPECIAL HEALTH CARE NEEDS PROGRAM/PHCP; PHYSICALLY HANDICAPPED CHILDREN'S PROGRAMSUFFOLK COUNTY DEPARTMENT OF HEALTH SERVICES-DIVISION OF SERVICES FOR CHILDREN WITH SPECIAL NEEDS
    CHRONIC FATIGUE SUPPORT GROUPProvides a support group for people with Chronic Fatigue Syndrome, also known as Epstein-Barr, CFS or CFIDS and Fibromyalgia. Meets the 1st Thursday of every month at 7pm (Beginners Meeting) and 7:30pm (Regular Meeting) in Conference Rooms 3,4, and 5.SuffolkCHRONIC FATIGUE SUPPORT GROUPJOHN T. MATHER MEMORIAL HOSPITAL
    CROHN'S AND COLITIS FOUNDATION OF AMERICA-LONG ISLAND CHAPTERProvides support and information for patients with Crohn's disease or ulcerative colitis (also known as IBD or Inflammatory Bowel Disease). These include: hospital visitor, mutual help groups, physician referral service, speakers bureau and peer counseling. Serves both Nassau and Suffolk Counties.NassauCROHN'S AND COLITIS FOUNDATION OF AMERICA-LONG ISLAND CHAPTERCROHN'S AND COLITIS FOUNDATION OF AMERICA-LONG ISLAND CHAPTER
    DIABETES SUPPORT GROUPOffers individuals with diabetes and their family members information about the illness, nutritional advice and opportunities to network and share their experiences. Call for meeting dates and times.NassauDIABETES SUPPORT GROUPNORTHWELL HEALTH
    DISCUSSIONSProvides an informal, ongoing chat for people whose lives have been touched by cancer.NassauDISCUSSIONS1 IN 9: THE LONG ISLAND BREAST CANCER ACTION COALITION
    FAMILY SUPPORTFor those who have had cancer or are undergoing treatment, their family and friends.NassauFAMILY SUPPORT1 IN 9: THE LONG ISLAND BREAST CANCER ACTION COALITION
    FRIENDS OF KAREN, INC.Dedicated to providing emotional, financial, and advocacy support to children from birth to 21 who are diagnosed with cancer or other life threatening illnesses. Friends of Karen keeps families together and ensures the well-being of every family member during this most difficult time.SuffolkFRIENDS OF KAREN, INC.FRIENDS OF KAREN, INC.
    GOLDEN HEARTS GREAT SOUTH BAY CHAPTERA volunteer movement to promote awareness within communities of the benefits of heart and lung surgical and medical procedures offered at Deborah Heart and Lung Center in Browns Mills, N.J. Newsletter, Educational Material, Agency Brochure.SuffolkGOLDEN HEARTS GREAT SOUTH BAY CHAPTERDEBORAH HOSPITAL FOUNDATION
    GREAT NECK BREAST CANCER COALITIONOffers lectures, workshops, seminars, and newsletters providing the most up-to-date information on health and wellness, including nutrition, exercise, reduction of toxins in the home, and environmental safety. Provides guidance and support for newly diagnosed breast cancer patients and their families, with information on the latest scientific progress in detection, treatment and recovery. Networks with regional and national Breast Cancer organizations and national health organizations.NassauGREAT NECK BREAST CANCER COALITIONGREAT NECK BREAST CANCER COALITION
    GROUP COUNSELING-SYOSSETOffers group counseling to all cancer patients, relatives and spouses of patients. Special groups for lung patients and caregivers. Various groups offered at other times; call or check web for more information. Group counseling is offered at CancerCare's office in Syosset.NassauGROUP COUNSELING-SYOSSETCANCERCARE LONG ISLAND OFFICE
    HEART CLUBProvides education and emotional support for heart patients and their families.SuffolkHEART CLUBHUNTINGTON HOSPITAL
    HEWLETT HOUSEProvides a free, psychosocial community and state-of-the-art learning resource center. Offers basic components of therapy and support, education and socialization to breast cancer victims, their families and care givers. Also offers free wigs, prostheses and brassieres to uninsured people who are undergoing breast cancer treatment. Serves all those touched by breast cancer and related cancers. Serves all of New York State. Walk in.NassauHEWLETT HOUSE1 IN 9: THE LONG ISLAND BREAST CANCER ACTION COALITION
    HUNTINGTON'S DISEASE SOCIETY OF AMERICAPromotes research, family support and advocacy for individuals/families affected by Huntington's Disease. Call for more information.HUNTINGTON'S DISEASE SOCIETY OF AMERICAHUNTINGTON'S DISEASE SOCIETY OF AMERICA
    I CAN COPE CANCER SUPPORT GROUPOffers a structured group education program for adult cancer patients and their family members/caregivers. Participants discuss cancer and its treatments, managing side effects, communication, resources, and maximizing health with diet and exercise. Call for dates and times.NassauI CAN COPE CANCER SUPPORT GROUPWINTHROP UNIVERSITY HOSPITAL
    INDIVIDUAL COUNSELINGProvides short term, goal focused individual counseling for patient and family members enabling them to cope with the illness. Offers bereavement counseling for survivors to enable them to cope with the loss.NassauINDIVIDUAL COUNSELINGCANCERCARE LONG ISLAND OFFICE
    INFORMATION AND EDUCATION PROGRAMSOffers information and education programs for people with lupus, health care professionals and the public. Provides patient advocacy, an up-to-date lending library of books,videos and articles regarding Lupus and its complications, a referral list of physicians specializing in lupus, a quarterly local newsletter, a national newsletter, Spanish speaking outreach and a speakers bureau.NassauINFORMATION AND EDUCATION PROGRAMSLUPUS ALLIANCE OF AMERICA-LONG ISLAND/QUEENS AFFILIATE
    LET KIDS BE KIDS ACTIVITIESProvides the opportunity for children with lupus as well as children who have an immediate family member with lupus to socialize and communicate with other children facing the same issues and difficulties. Day trips are planned, including transportation. Call for information. Serves Long Island and Queens.NassauLET KIDS BE KIDS ACTIVITIESLUPUS ALLIANCE OF AMERICA-LONG ISLAND/QUEENS AFFILIATE
    LONG TERM HOME HEALTH CARE PROGRAMProvides home health care programs for the chronically-ill who are essentially homebound because of physical limitations. Services include assessment by a community health nurse, individualized treatment plans, nursing care, physical and occupational therapy, speech therapy and audiology testing, respiratory therapy, nutritional planning, social work counseling, home health aides, homemakers, housekeepers, personal care workers, medical supplies and equipment and 24 hour telephone availability. Additional services include housing modifications, home maintenance, moving services, social day care, respite care, emergency alarm response service and congregate meals. Also offers medical transportation, laboratory work, x-ray, drugs, dentistry, ophthalmology, podiatry, medical day care and discharge planning.NassauLONG TERM HOME HEALTH CARE PROGRAMPARKER JEWISH INSTITUTE FOR HEALTH CARE AND REHABILITATION
    LUPUS SUPPORT GROUPOffers support groups for Lupus patients, their families and friends. Support groups offered at various locations throughout Long Island and Queens. Call for information.NassauLUPUS SUPPORT GROUPLUPUS ALLIANCE OF AMERICA-LONG ISLAND/QUEENS AFFILIATE
    MULTIPLE SCLEROSIS TREATMENT CENTERProvides diagnostic testing, second opinions to possible multiple sclerosis (MS) patients. Offers medication therapies, physical therapy, patient education, referrals and psychological support. Offers participation in clinical research trials. Participates in New York State MS Consortium. Assures confidentiality. Call for additional information.NassauMULTIPLE SCLEROSIS TREATMENT CENTERWINTHROP UNIVERSITY HOSPITAL
    NATIONAL ORGANIZATION FOR RARE DISORDERSActs as a clearinghouse and referral service for information on rare diseases. Maintains a comprehensive rare disease database, which provides families with information on over 1,100 rare disorders. Its networking program links families with other families who are afflicted with similar disorders. Accumulates and disseminates information about orphan drugs and devices, making known their availability. Advocates the needs of people with rare disorders. Provides disease specific medical reports written in lay language. Also offers a Medication Assistance Program for specific drugs and a medical equipment exchange program. Publishes Orphan Disease Update and Resource Guide . Call for more information.NATIONAL ORGANIZATION FOR RARE DISORDERSNATIONAL ORGANIZATION FOR RARE DISORDERS
    OSTOMY SUPPORT GROUPProvides support and education to stoma patients and their families in coping with and managing ileostomy, urostomy or colostomy.SuffolkOSTOMY SUPPORT GROUPNORTHWELL HEALTH
    PARKINSON DISEASE SUPPORT GROUPOffers information, education and resources for patients, families and friends affected by this disease. Staffed by American Parkinson's Disease Association. Call the American Parkinson's Disease Association at 631-862-3560 or check www.liapda.org for more information.PECONIC BAY MEDICAL CENTERPECONIC BAY MEDICAL CENTER
    PEDIATRIC SUPPORT GROUPSOffers pediatric support groups including: Hope for Hearts, a support group for parents and siblings of children with congenital heart defects Our Little Heroes/Oncology Parent Support Network, offering mutual support and guidance for families of children with cancer. Call for schedule/information.SuffolkPEDIATRIC SUPPORT GROUPSSTONY BROOK UNIVERSITY HOSPITAL
    QUALITY OF LIFE PROGRAMDesigned to assist those people with lupus who care for themselves or have needs not covered by community sources of assistance. Resources support medical, emotional, and financial crises with limited funds and on a temporary basis. Call for information. Serves Long Island and Queens.NassauQUALITY OF LIFE PROGRAMLUPUS ALLIANCE OF AMERICA-LONG ISLAND/QUEENS AFFILIATE
    REFERRALSProvides referrals for medical and genetic support to families of children afflicted with Tay-Sachs and allied diseases. Also makes referrals to parents outreach and on-going parent support groups. Referrals for current testing to area laboratories that participate in quality control program.REFERRALSNATIONAL TAY-SACHS AND ALLIED DISEASES ASSOCIATION/NEW YORK AREA CHAPTER
    REFERRAL SERVICESDistributes an informational guide, Coping with Cancer on the East End: A Practical Resource Guide which describes in detail the many resources that are available for cancer patients on the East End of Long Island.SuffolkREFERRAL SERVICESFIGHTING CHANCE, INC.
    RESPITE, REIMBURSEMENT PROGRAMProvides respite reimbursement for technology dependent, medically fragile, chronically ill and developmentally disabled children ages birth through 18 years.SuffolkRESPITE, REIMBURSEMENT PROGRAMANGELA'S HOUSE
    SIBSPLACEA prevention and support program for children with sibling(s) or parent(s) with cancer or other devastating or chronic illnesses. Services include social interaction, mentoring, tutoring, arts and crafts development, youth-centered games and scheduled special events/field trips. Program provides siblings with emotional support, attention, and routine at a time when the families' resources are focused on the needs of the loved one(s).NassauSIBSPLACESOUTH NASSAU COMMUNITIES HOSPITAL
    SUFFOLK CHAPTER OF DEBORAH HOSPITALA volunteer movement to promote awareness within communities of the benefits of heart and lung surgical and medical procedures offered at Deborah Heart and Lung Center in Browns Mills, N.J. Newsletter, Educational Material, Agency Brochure.SuffolkSUFFOLK CHAPTER OF DEBORAH HOSPITALDEBORAH HOSPITAL FOUNDATION
    SUPPORT GROUPSConducts 10 week support groups for recently divorced/separated persons, single parent, teens of divorced/separated families, caretakers of the ill or elderly. New parents, bereaved persons. Separate bereavement groups address loss of spouse, loss of parent (for teens), loss of parent (for adults) and loss of grandparent. Dates vary. Call for details or to join.NassauSUPPORT GROUPSMID-ISLAND Y-JCC
    THE DIABETES EDUCATION SERIESProvides education and support to diabetics and their families who want to take control of their disease and incorporate time saving tips into their daily routine. Provides up-to-date information to all on aspects of diabetes self management, including diet, medication and exercise.SuffolkTHE DIABETES EDUCATION SERIESNORTH SHORE-LIJ HUNTINGTON HOSPITAL-DOLAN FAMILY HEALTH CENTER
    THE SARAH GRACE FOUNDATION FOR CHILDREN WITH CANCER, INC.Dedicated to improving the quality of life of children with cancer and to provide comfort and support to the families. Services include recreational and wish granting for patient and siblings, financial aid and support to the parents and disseminating information to the general public about children suffering from cancer. Operates in Steven and Alexandra Cohen Children's Medical Center of New York, Winthrop, Columbia, Montefiore, Nassau University Medical Center and other area hospitals.NassauTHE SARAH GRACE FOUNDATION FOR CHILDREN WITH CANCER, INC.THE SARAH GRACE FOUNDATION FOR CHILDREN WITH CANCER, INC.
    WELL SPOUSE SUPPORT GROUPSMaintains national network of well spouses (husbands and wives of chronically ill persons). Offers referrals to well spouse Support Groups. Has a Newsletter, Yearly Conference, online peer Mentorship Program, Round Robin Letter Writing group, and Respite Weekends. Advocates for programs that help families deal with chronic illness and educates healthcare professionals and the general public about the special challenges and unique roles well spouses face every day. Local group meets in Albertson, LI (Searingtown Rd., and IU Willets Road) at the Rehabilitation Center.WELL SPOUSE SUPPORT GROUPSWELL SPOUSE ASSOCIATION
    WORKSHOPSOffers to the general public, a three-hour educational program addressing various lifestyle issues (coping strategies, family relationships, nutrition) related to chronic illness. Held at libraries in Nassau, Suffolk and Queens. Check web site for topics, dates and locations.NassauWORKSHOPSLUPUS ALLIANCE OF AMERICA-LONG ISLAND/QUEENS AFFILIATE

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